My fourth column for Catapult, about searching for community and likeness, is live: “That’s when I realized how deeply I had been searching for more than a label to bridge the disconnect I felt. I had been searching for others like us. Perhaps, longing to see myself in the story, hungry to find a place […]

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I wrote about getting my son’s genetic test results  for Catapult.

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My new column for Catapult, “What Genes Can’t Tell Us,” went live this morning. I’d love for you to check it out.

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In one day in 2015, I learned these three things: I was pregnant. There were no genetic answers for Tophs’s challenges. There was a genetic finding we weren’t looking for. I wrote about Tophs’s medical history here–about searching for causes of his growth failure, hypoglycemia, and developmental challenges. I didn’t write that in one phone […]

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OpenMediaVault(OMV)配置你的私有云盘--NextCloud - 简书:OpenMediaVault(OMV)配置你的私有云盘--NextCloud [TOC] OMV配置你的私有云盘--NextCloud 现在云盘厂家已经所剩无几，你能选的余地已经很少了，是时候找一个私有的云盘解决方案了。你绝对不是第一个有这个想法的人，所以很幸运，在开源的大世界 ...

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My two-month-old baby, Juliet, slept nine hours last night. Then these things happened: 1) I woke up, and racism was over. I didn’t even see color. Everyone was iridescent, and they just hated me for my character but said I was good at sports. 2) Not only that, but the people who would have been […]

Read more "When Your Baby Sleeps Nine Hours"

I wrote about our medical journey with Tophs for Narratively this month. It was a difficult piece to write that I really wanted to get right. I’d love if you’d take a look.

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